{"id":2085,"date":"2025-06-24T14:09:14","date_gmt":"2025-06-24T20:09:14","guid":{"rendered":"https:\/\/asipagac.com\/?p=2085"},"modified":"2025-06-24T14:09:14","modified_gmt":"2025-06-24T20:09:14","slug":"estreno-global-una-historia-que-puede-cambiarlo-todo","status":"publish","type":"post","link":"https:\/\/asipagac.com\/en\/estreno-global-una-historia-que-puede-cambiarlo-todo\/","title":{"rendered":"Estreno Global &#8211; Una Historia que puede cambiarlo todo"},"content":{"rendered":"<p>\ud83e\ude78 Una gota que puede cambiarlo todo.<\/p>\n<p>El pr\u00f3ximo 28 de junio, en el marco del D\u00eda Mundial del Cribado Neonatal, celebramos un evento muy especial: la presentaci\u00f3n global del proyecto La vida en una gota.<br \/>\nUn homenaje al legado del Dr. Robert Guthrie, padre del cribado neonatal, cuya visi\u00f3n salv\u00f3 \u2014y sigue salvando\u2014 miles de vidas en todo el mundo.<\/p>\n<p>Un reconocimiento tambi\u00e9n a quienes abrieron camino en nuestro pa\u00eds, como Don Federico Mayor Zaragoza y Do\u00f1a Magdalena Ugarte, impulsores pioneros del cribado en Espa\u00f1a.<br \/>\nHabr\u00e1 dos presentaciones internacionales, accesibles desde cualquier lugar del mundo:<\/p>\n<p>\ud83d\udd52 15:00 h (hora espa\u00f1ola) &#8211; <a class=\"IfLmRNJWDKWJahDEmDaCEOnDSeXHtBgyBFDsa\" tabindex=\"0\" href=\"https:\/\/lnkd.in\/d-jEfwDB\" target=\"_self\" data-test-app-aware-link=\"\">https:\/\/lnkd.in\/d-jEfwDB<\/a><br \/>\n\ud83c\udf19 22:00 h (hora espa\u00f1ola) &#8211; <a class=\"IfLmRNJWDKWJahDEmDaCEOnDSeXHtBgyBFDsa\" tabindex=\"0\" href=\"https:\/\/lnkd.in\/drGkiG8r\" target=\"_self\" data-test-app-aware-link=\"\">https:\/\/lnkd.in\/drGkiG8r<\/a><\/p>\n<p>Este evento ha sido posible gracias a una alianza sin precedentes entre instituciones cient\u00edficas, m\u00e9dicas y sociales de Europa y Am\u00e9rica Latina. Se han sumado con entusiasmo:<br \/>\nSociedad Latinoamericana de Errores Innatos del Metabolismo y Pesquisa Neonatal<br \/>\nAcademia de la Ciencia de Latinoam\u00e9rica<br \/>\n<a class=\"IfLmRNJWDKWJahDEmDaCEOnDSeXHtBgyBFDsa\" tabindex=\"0\" href=\"https:\/\/www.linkedin.com\/company\/relagh\/\" target=\"_self\" data-test-app-aware-link=\"\">Red Latinoamericana de Genetica Humana (RELAGH)<\/a><br \/>\n<a class=\"IfLmRNJWDKWJahDEmDaCEOnDSeXHtBgyBFDsa\" tabindex=\"0\" href=\"https:\/\/www.linkedin.com\/company\/sociedade-brasileira-de-gen%C3%A9tica-m%C3%A9dica\/\" target=\"_self\" data-test-app-aware-link=\"\">Brazilian Society of Medical Genetics and Genomics<\/a><br \/>\n<a class=\"IfLmRNJWDKWJahDEmDaCEOnDSeXHtBgyBFDsa\" tabindex=\"0\" href=\"https:\/\/www.linkedin.com\/company\/international-society-for-neonatal-screening\/\" target=\"_self\" data-test-app-aware-link=\"\">International Society for Neonatal Screening<\/a><br \/>\nAECOM<br \/>\nSEEIM (<a class=\"IfLmRNJWDKWJahDEmDaCEOnDSeXHtBgyBFDsa\" tabindex=\"0\" href=\"https:\/\/www.linkedin.com\/company\/asociaci%C3%B3n-espa%C3%B1ola-de-pediatr%C3%ADa\/\" target=\"_self\" data-test-app-aware-link=\"\">Asociaci\u00f3n Espa\u00f1ola de Pediatr\u00eda (AEP)<\/a><br \/>\n<a class=\"IfLmRNJWDKWJahDEmDaCEOnDSeXHtBgyBFDsa\" tabindex=\"0\" href=\"https:\/\/www.linkedin.com\/company\/eurordis\/\" target=\"_self\" data-test-app-aware-link=\"\">EURORDIS-Rare Diseases Europe<\/a><br \/>\n<a id=\"ember38\" class=\"ember-view\" href=\"https:\/\/www.linkedin.com\/in\/feder-ong-44b65a1a4\/\">FEDER ONG<\/a><br \/>\n<a id=\"ember39\" class=\"ember-view\" href=\"https:\/\/www.linkedin.com\/in\/familias-ga-asociaci%C3%B3n-nacional-8a3860252\/\">FAMILIAS GA Asociaci\u00f3n Nacional<\/a><br \/>\nY m\u00faltiples asociaciones de pacientes de EIM de Latinoam\u00e9rica<\/p>\n<p>Agradecimiento a los presidentes y representantes que han hecho suyo este proyecto con tanto cari\u00f1o y compromiso:<br \/>\nDr. Gustavo Borrajo<br \/>\nDr. <a id=\"ember40\" class=\"ember-view\" href=\"https:\/\/www.linkedin.com\/in\/francesc-palau-47b845ab\/\">Francesc Palau<\/a><br \/>\nDra. <a id=\"ember41\" class=\"ember-view\" href=\"https:\/\/www.linkedin.com\/in\/janet-hoenicka-5308b334\/\">Janet Hoenicka<\/a><br \/>\nDr. <a id=\"ember42\" class=\"ember-view\" href=\"https:\/\/www.linkedin.com\/in\/dimitrisplatis\/\">Dimitris Platis<\/a><\/p>\n<p>Y un agradecimiento especial a <a id=\"ember43\" class=\"ember-view\" href=\"https:\/\/www.linkedin.com\/in\/helena-carpio-30017978\/\">Helena Carpio<\/a> de la asociaci\u00f3n Familias GA, por su soporte constante y a todas las asociaciones latinoamericanas que har\u00e1n posible la emisi\u00f3n t\u00e9cnica de este evento.<\/p>\n<p>Porque una gota puede ser vida.<br \/>\nPorque el conocimiento compartido traspasa fronteras.<br \/>\nY porque ning\u00fan reci\u00e9n nacido deber\u00eda quedar atr\u00e1s.<\/p>\n<p><a class=\"IfLmRNJWDKWJahDEmDaCEOnDSeXHtBgyBFDsa\" tabindex=\"0\" href=\"https:\/\/www.linkedin.com\/search\/results\/all\/?keywords=%23lavidaenunagota&amp;origin=HASH_TAG_FROM_FEED\" data-test-app-aware-link=\"\"><span class=\"visually-hidden\">hashtag<\/span><span aria-hidden=\"true\">#<\/span>LaVidaEnUnaGota<\/a> <a class=\"IfLmRNJWDKWJahDEmDaCEOnDSeXHtBgyBFDsa\" tabindex=\"0\" href=\"https:\/\/www.linkedin.com\/search\/results\/all\/?keywords=%23d%C3%ADamundialdelcribadoneonatal&amp;origin=HASH_TAG_FROM_FEED\" data-test-app-aware-link=\"\"><span class=\"visually-hidden\">hashtag<\/span><span aria-hidden=\"true\">#<\/span>D\u00edaMundialDelCribadoNeonatal<\/a> <a class=\"IfLmRNJWDKWJahDEmDaCEOnDSeXHtBgyBFDsa\" tabindex=\"0\" href=\"https:\/\/www.linkedin.com\/search\/results\/all\/?keywords=%23robertguthrie&amp;origin=HASH_TAG_FROM_FEED\" data-test-app-aware-link=\"\"><span class=\"visually-hidden\">hashtag<\/span><span aria-hidden=\"true\">#<\/span>RobertGuthrie<\/a> <a class=\"IfLmRNJWDKWJahDEmDaCEOnDSeXHtBgyBFDsa\" tabindex=\"0\" href=\"https:\/\/www.linkedin.com\/search\/results\/all\/?keywords=%23erroresinnatosdelmetabolismo&amp;origin=HASH_TAG_FROM_FEED\" data-test-app-aware-link=\"\"><span class=\"visually-hidden\">hashtag<\/span><span aria-hidden=\"true\">#<\/span>ErroresInnatosDelMetabolismo<\/a> <a class=\"IfLmRNJWDKWJahDEmDaCEOnDSeXHtBgyBFDsa\" tabindex=\"0\" href=\"https:\/\/www.linkedin.com\/search\/results\/all\/?keywords=%23cribadoneonatal&amp;origin=HASH_TAG_FROM_FEED\" data-test-app-aware-link=\"\"><span class=\"visually-hidden\">hashtag<\/span><span aria-hidden=\"true\">#<\/span>CribadoNeonatal<\/a> <a class=\"IfLmRNJWDKWJahDEmDaCEOnDSeXHtBgyBFDsa\" tabindex=\"0\" href=\"https:\/\/www.linkedin.com\/search\/results\/all\/?keywords=%23pacientesraros&amp;origin=HASH_TAG_FROM_FEED\" data-test-app-aware-link=\"\"><span class=\"visually-hidden\">hashtag<\/span><span aria-hidden=\"true\">#<\/span>PacientesRaros<\/a> <a class=\"IfLmRNJWDKWJahDEmDaCEOnDSeXHtBgyBFDsa\" tabindex=\"0\" href=\"https:\/\/www.linkedin.com\/search\/results\/all\/?keywords=%23latinoam%C3%A9ricaunida&amp;origin=HASH_TAG_FROM_FEED\" data-test-app-aware-link=\"\"><span class=\"visually-hidden\">hashtag<\/span><span aria-hidden=\"true\">#<\/span>Latinoam\u00e9ricaUnida<\/a> <a class=\"IfLmRNJWDKWJahDEmDaCEOnDSeXHtBgyBFDsa\" tabindex=\"0\" href=\"https:\/\/www.linkedin.com\/search\/results\/all\/?keywords=%23cienciaconalma&amp;origin=HASH_TAG_FROM_FEED\" data-test-app-aware-link=\"\"><span class=\"visually-hidden\">hashtag<\/span><span aria-hidden=\"true\">#<\/span>CienciaConAlma<\/a> <a class=\"IfLmRNJWDKWJahDEmDaCEOnDSeXHtBgyBFDsa\" tabindex=\"0\" href=\"https:\/\/www.linkedin.com\/search\/results\/all\/?keywords=%23m%C3%A1svisibles&amp;origin=HASH_TAG_FROM_FEED\" data-test-app-aware-link=\"\"><span class=\"visually-hidden\">hashtag<\/span><span aria-hidden=\"true\">#<\/span>M\u00e1sVisibles<\/a> <a class=\"IfLmRNJWDKWJahDEmDaCEOnDSeXHtBgyBFDsa\" tabindex=\"0\" href=\"https:\/\/www.linkedin.com\/search\/results\/all\/?keywords=%23feder&amp;origin=HASH_TAG_FROM_FEED\" data-test-app-aware-link=\"\"><span class=\"visually-hidden\">hashtag<\/span><span aria-hidden=\"true\">#<\/span>FEDER<\/a> <a class=\"IfLmRNJWDKWJahDEmDaCEOnDSeXHtBgyBFDsa\" tabindex=\"0\" href=\"https:\/\/www.linkedin.com\/search\/results\/all\/?keywords=%23eurordis&amp;origin=HASH_TAG_FROM_FEED\" data-test-app-aware-link=\"\"><span class=\"visually-hidden\">hashtag<\/span><span aria-hidden=\"true\">#<\/span>Eurordis<\/a> <a class=\"IfLmRNJWDKWJahDEmDaCEOnDSeXHtBgyBFDsa\" tabindex=\"0\" href=\"https:\/\/www.linkedin.com\/search\/results\/all\/?keywords=%23seeim&amp;origin=HASH_TAG_FROM_FEED\" data-test-app-aware-link=\"\"><span class=\"visually-hidden\">hashtag<\/span><span aria-hidden=\"true\">#<\/span>SEEIM<\/a> <a class=\"IfLmRNJWDKWJahDEmDaCEOnDSeXHtBgyBFDsa\" tabindex=\"0\" href=\"https:\/\/www.linkedin.com\/search\/results\/all\/?keywords=%23isns&amp;origin=HASH_TAG_FROM_FEED\" data-test-app-aware-link=\"\"><span class=\"visually-hidden\">hashtag<\/span><span aria-hidden=\"true\">#<\/span>ISNS<\/a> <a class=\"IfLmRNJWDKWJahDEmDaCEOnDSeXHtBgyBFDsa\" tabindex=\"0\" href=\"https:\/\/www.linkedin.com\/search\/results\/all\/?keywords=%23saludglobal&amp;origin=HASH_TAG_FROM_FEED\" data-test-app-aware-link=\"\"><span class=\"visually-hidden\">hashtag<\/span><span aria-hidden=\"true\">#<\/span>SaludGlobal<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>\ud83e\ude78 Una gota que puede cambiarlo todo. El pr\u00f3ximo 28 de junio, en el marco del D\u00eda Mundial del Cribado Neonatal, celebramos un evento muy especial: la presentaci\u00f3n global del proyecto La vida en una gota. Un homenaje al legado del Dr. Robert Guthrie, padre del cribado neonatal, cuya visi\u00f3n salv\u00f3 \u2014y sigue salvando\u2014 miles<\/p>","protected":false},"author":2,"featured_media":2086,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[53],"tags":[],"class_list":["post-2085","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-salud"],"acf":[],"_links":{"self":[{"href":"https:\/\/asipagac.com\/en\/wp-json\/wp\/v2\/posts\/2085","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/asipagac.com\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/asipagac.com\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/asipagac.com\/en\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/asipagac.com\/en\/wp-json\/wp\/v2\/comments?post=2085"}],"version-history":[{"count":1,"href":"https:\/\/asipagac.com\/en\/wp-json\/wp\/v2\/posts\/2085\/revisions"}],"predecessor-version":[{"id":2087,"href":"https:\/\/asipagac.com\/en\/wp-json\/wp\/v2\/posts\/2085\/revisions\/2087"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/asipagac.com\/en\/wp-json\/wp\/v2\/media\/2086"}],"wp:attachment":[{"href":"https:\/\/asipagac.com\/en\/wp-json\/wp\/v2\/media?parent=2085"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/asipagac.com\/en\/wp-json\/wp\/v2\/categories?post=2085"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/asipagac.com\/en\/wp-json\/wp\/v2\/tags?post=2085"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}